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25/03/2004 Documentary, TV Movie 0h 50m
74
User score

Overview

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

  1. Patrick Collerton

    Director

Top billed cast

  1. Jonny Kennedy

  2. View more

Full Cast & Crew

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Status
Released

Original Language
English

Budget
$0.00

Revenue
$0.00

Keywords